Dr. Prashant Mathur (India) presented cancer registry data from India, highlighting trends in HPV-related cancers and the challenges of incomplete national coverage. He emphasized the rising burden of cervical cancer in specific high‑incidence states and the need to strengthen population‑based registries for accurate monitoring. The presentation underscored gaps in mortality reporting and disparities between urban […]
Topic: Cancer Surveillance
Cancer registries – data collection, challenges and steps to strengthen registries and improve cervical cancer data collection – Nepal
Dr. Pradip Gyanwali (Nepal) outlined Nepal’s cancer registry system, covering only 21% of the population through hospital‑ and population‑based networks. Cervical cancer ranks second among women, with screening uptake at just 16% and higher incidence in rural areas. Major challenges include fragmented reporting, lack of electronic records, and limited funding. He recommended digitization, nationwide registry […]
Cancer registries – data collection, challenges and steps to strengthen registries and improve cervical cancer data collection – Bangladesh
Dr. Rifat Ara (Bangladesh) described the evolution of Bangladesh’s cancer registries, which remain primarily hospital-based since 2005, with no nationwide population registry. Data collection is mostly paper-based, with limited electronic tracking through screening programs for cervical and breast cancer. Challenges include lack of awareness, unequal access to care, inadequate reporting (especially from private facilities), and […]
Cancer registries – data collection, challenges and steps to strengthen registries and improve cervical cancer data collection – Sri Lanka
Dr. Suraj Perera (Sri Lanka) detailed the national cancer registry, which captures data from diagnosis and treatment, with limited mortality data from one district. Nine main cancer centers operate nationally, with plans for a comprehensive oncology center in each district and province. Data collection relies on the CanReg5 software and pathology reports, but challenges include […]
Cancer registries – data collection, challenges and steps to strengthen registries and improve cervical cancer data collection – Pakistan
Pakistan’s first cancer registry was established in the 1960s at the Armed Forces Institute of Pathology (AFIP) in Rawalpindi. From the 1970s to 1990s, the Pakistan Medical Research Council (PMRC) created the National Cancer Registry (NCR). A population-based registry in Karachi (1995–2007) led by Yasmin Bhurgri shared data with IARC and WHO. The Punjab Cancer […]
Cancer registries – data collection, challenges and steps to strengthen registries and improve cervical cancer data collection – Q&A Session
Participants raised questions on data duplication between population- and hospital-based registries, the use of national IDs for follow-up, and religious barriers to registry participation and vaccination (notably in Bangladesh). Nepal explained using active and passive data collection with manual and software-based duplication checks; Bangladesh highlighted cultural stigma and low female empowerment as barriers. India detailed […]
The African Cancer Registry Network
Le Réseau Africain des Registres du Cancer (AFCRN), créé en 2012, regroupe 35 registres de population dans 25 pays d’Afrique subsaharienne. Issu de collaborations initiales en Ouganda et au Kenya, il sert aujourd’hui de centre régional de soutien aux registres du cancer sous l’égide du CIRC. Ses activités incluent des études de survie, l’analyse des […]
The African Cancer Registry Network
The Africa Cancer Registries Network (AFCRN), established in 2012, brings together 35 population-based registries from 25 sub-Saharan African countries. Originating from earlier collaborations in Uganda and Kenya, the network now serves as a regional hub for cancer registry support under IARC. Its work includes survival studies, trend analysis, record linkages with screening and HPV vaccine […]