Cancer registries – data collection, challenges and steps to strengthen registries and improve cervical cancer data collection – Q&A Session

Participants raised questions on data duplication between population- and hospital-based registries, the use of national IDs for follow-up, and religious barriers to registry participation and vaccination (notably in Bangladesh). Nepal explained using active and passive data collection with manual and software-based duplication checks; Bangladesh highlighted cultural stigma and low female empowerment as barriers. India detailed its robust duplicate-checking software and quality assurance, stressing linkage of screening data to cancer registries for better outcomes. Discussion included challenges with non-pathologically confirmed cancers and the need for unique patient identifiers across countries. Closing remarks emphasized regional collaboration (South Asia Consortium), resource mobilization, and scaling population-based registries for cervical and other cancers.

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Media: Video